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Citizen-based health information technologies

National governments and healthcare bodies throughout much of the developed world have over the past few years started to promote the use of computerised technologies and systems to support citizen-centred healthcare. New technologies enable implementation of policies to improve citizen access to knowledge and resources and empower patients and encourage them to become more involved in and responsible for their healthcare throughout their lives.

The Public Zone on OpenClinical aims to highlight examples of new web-based technologies and applications designed to offer services directly to the public. These encompass in the main:

  • Healthcare information sites and portals
  • Personal health records (PHRs)
  • Applications to support the management of individual medical conditions.

Web-based Personal Health Records and portable USB devices carrying emergency medical information are becoming increasingly widely available and promoted to citizens. Some PHRs are free to use; others are commercial, often subscription-based. Portable USB devices are all available as commercial products. It remains to be seen whether such consumer-based health information technologies will become widely adopted and whether citizens will view them as useful and effective, and secure and trustworthy.

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  e-Health Applications designed for use by the public Initial applications include:
PQL (Pure Quality Life) from Sweden: stress monitoring and manangement; Di@bcarnet (Aide aux Jeunes Diabetiques): an online diary for managing diabetes in young French patients; An online diabetes tool for children in the USA with type 1 diabetes from Cerner Corporation; MyTeleCare from Singapore: monitoring of female outpatients with chronic diseases.

 

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  Demonstrations of e-Health applications designed for use by the public Initial demonstrations include:
IZIP from the Czech Republic: web-based personal health record; LifeSensor from Germnay: web-based personal health record; Lorenzo from iSOFT plc: electronic medical record; t+ diabetes from the UK: diabetes monitoring system.
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References

Perspectives on the Future of Personal Health Records. Prepared for California HealthCare Foundation by Christopher J. Gearon et al. June 2007

[California HealthCare Foundation]   []

"As a hub of information and information-management tools controlled by the patient, personal health records present a number of promises, perils, and challenges in the years ahead. In this report, six experts share their views on the future of PHRs, from the perspective of the technologist, informed patient, physician, employer, and public health professional. "The ideal PHR holds tremendous potential, according to these experts. It could receive and evaluate information from a patient's lab results or monitoring devices; store a patient's observations about physical and social environment; link with a clinician's electronic health record; and much more. On a grander scale, PHRs could also make health care more affordable by urging prevention and wellness, and by streamlining care delivery. "But some worry that PHRs might disrupt the doctor-patient relationship, saddle overburdened physicians with unreimbursed information-management duties, and overload consumers with data. "

The Value of Personal Health Records A Joint Position Statement for Consumers of Health Care by American Health Information Management Association American Medical Informatics Association, July 2006

[]   [AMIA]

" The American Health Information Management Association (AHIMA) and the American Medical Informatics Association (AMIA) advocate empowering individuals to manage their healthcare through the use of a personal health record (PHR). The PHR is a tool for collecting, tracking and sharing important, up-to-date information about an individual’s health or the health of someone in their care. Using a PHR will help people make better health decisions and improves quality of care by allowing them to access and use information needed to communicate effectively with others about their healthcare. "

Consumers in Health Care: Creating Decision Support Tools That Work. Prepared for California HealthCare Foundation by Shaller Consulting. June 2006

[OC]   []

"In response to the trend of increasing consumer involvement in health care decision making, [this report] examines the various forms and functions of tools available to help consumers make more informed choices. It summarizes evidence regarding the effectiveness of these tools, and offers possible strategies for overcoming limitations to their widespread use. [...]"

Entry on OpenClinical: 16 November 2005
Last main update: 11 March 2007; 07 June 2007

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